chicken soup as catalyst

I made a big pot of chicken soup the other day (see previous post).

Except for echinacea and goldenseal, I have never found any concoction that does battle with a sore throat and cold better than chicken soup. Of course, you have to add lots of garlic and onions. I also add a tablespoon of apple cider vinegar to leech the calcium from the chicken bones into the broth. And I load it with all kinds of other vegetables, which I discard after I have strained them out of the soup.

I picked out the wishbone to take home to my grandson so that we can both wish that his run-away cat would come home. That darned cat has been gone for almost a week — gone from the house (he’s been an indoor cat) but not from the property. He shows up every night on the outdoor camera that has been set up near the dish that’s left outside for him. I’m betting that he’s having the time of his life, and that even my outstanding chicken soup would not lure him back into captivity. On the other hand, he might come back for the love that awaits him behind that door that he now just ignores.

As I was ladling the hearty broth into freezer containers, I had flashes of some lines from an August Strinberg play that my once-husband once directed. (He was a big Strindberg fan.) It had something to do with servants discussing the fact that even though their employers got to eat the meat, the servants got the broth, and that’s where all the nutrition really is.

After my broth has cooled in the containers, I skim off the chicken fat accumulated at the top of each. I pick some up on my finger and taste it. Yum. Tasty cholesterol. When I was a kid, my mother would save the chicken fat from the soup and use it to brown chicken pieces for chicken fricasee. (Does anyone make chicken fricasee any more?)

My mother made chicken soup a staple in our house when I was a kid. Back then, in the 1940s, she used chicken necks and wings because they were cheap. (That was before chicken wings became so popular, of course.) I would help her pick out the meat from among the tiny boiled bones so that she could make chicken salad.

These days my mother doesn’t seem to like the watery consistency of chicken soup, so I thicken the broth into gravy, add the boiled chicken and freshly cooked vegetables, and turn it all into a hearty stew.

These days it’s hard to find food stuffs that mom really likes Something she devours one day she will refuse the next time it’s offered.

That’s the one thing you can count on regarding dementia — you can’t count on anything working more than once.

As it should be, there are all sorts of experiments going on to find ways to prevent and stall the progress of Alzheimer’s and other forms of dementia. What I wish is there was a better understanding of how to “make comfortable” people like my mother, who are at the far end of the journey and for whom there doesn’t seem to be any medications that are able to give her the peace of mind and pain-free body that she deserves.

I’ve already warned b!X that, before I get that bad, I will move in with him in Oregon, where they have a Death with Dignity law.

Or maybe I’ll just OD myself on chicken soup.

old remedies, old bones

I’m back in the place I left. Blood sometimes takes away the choice.

Plans hardly ever go as planned around here. New roofs sag, ceilings get cracks, seeds planted and nurtured succumb to frost, walls never get painted.

My plan for this trip to visit my mother was to help a new live-in aide acclimate to my mother and to this forsaken place. But, after an on-site interview, the aide changed her plans and is not coming after all. I can’t say I blame her. It would take a kind of frontierswoman personality to take on the situation here.

So, I’m here, instead to nurse my mother through some kind of sore throat. Or cold. The doctor said it is not strep.

She can’t seem to swallow pills any more, so I’m giving her liquid Tylenol. There are two bottles here, one is labeled “sore throat relief” and the other is “rapid blast.” The ingredients of both are identical. I guess the marketing ploy works, because here I am with two separate bottles when one would do When she wakes up at night, I make her tea with lemon and honey..

I am making a big pot of chicken soup. A whole chicken. Five cloves of garlic. Lots of carrots and celery. A parsnip and a turnip and onions. I wanted to put fresh parsley in the for Vitamin C, but the grocery store was out of parsley. Something to do with Easter and eggs, I’m supposing. I will cook the soup for hours and, hopefully, she will drink the broth.

She hurts all over. Our bones are tired.

I miss my grandson, he of the wall of hats, one of which belonged to my dad and is over a half-century old. Here he is, wearing it, acting out scenes for Mr. Magorium’s Wonder Emporium

From my daughter’s post on Facebook: Mr. Magorium: “You don’t have to be happy that I am leaving. All I ask is that you turn the page, keep reading, and let the next story begin. And when someone asks, tell them my story, with all its wonder, and end it, simply, ‘he died’.”

Ditto.

April reveries

We are all remembering that it was a year ago today. I see people smoking and I want to tell them. I want to tell them that they should have been there to see where it leads, what it leaves behind in those who feel his absence as much as they felt his presence.

I took a Valium this morning before my spinal MRI. I am still relaxed in reverie.

April is such a neither month — not yet really spring, still capable of the few flurries I spotted yesterday on my way from the mountains to the valley.

A wedding in April is a weather-chancy thing. My cousin’s daughter’s this past weekend took place in a venue that featured a panoramic view of the Hudson River and the foothills of the Catskills. If it had been a sunny day, the view would have been breathtaking.

The cousins of my generation sat together, recognizing that we were now the “elders” of the family, as our younger relatives stopped by every once in a while to chat with us. On that dreary April evening, the music and dancing and revelry reminded us that warmer vistas are just beyond sight. Youth and hope and love ruled for those several hours as a muted sun slipped behind the hilltops.

One of my cousins, who married into a family that, for generations, maintained a 24 room house in what is a nicer part of the city, hosted some of us from out of town. The house is theirs now, her and her husband, who spend part of the year in Florida. It’s a house filled with generations of ghosts, all of those who lived and died here, family and extended family. For generations. They might sell it if they could; but who wants a 24 room house in a one-family residential neighborhood. For now, it works as a home-base for a number of the clan, including their daughter and future son-in-law.

My cousins and I, for the most part, are very different — at least our lives meandered down different paths, mine having taken me a long way to the left. But they are tolerant of my politics, my lack of religion. They are probably more tolerant of my viewpoints than I am of theirs. They are able to interact and relate with me and with each other in ways that ignore all of those values that might divide us.

As we sit around the breakfast table over the kinds of food we all seem to like (little things, like corn toasties — which we don’t like to toast — and Polaner All-fruit instead of sugar-ridden jelly or jam) they make me laugh. They do not pressure, they do not manipulate. Together, we are the kids we were who grew up playing “Flies Up” on their front stoop, even through dismal April afternoons.

We relax into the neither-nor of April, a time of its own, of our own.

There is another family wedding coming in June. I will be there again, in the bosom of family.

Closer by, my mom slips inevitably into dementia’s final horror. I stopped her from eating a paper plate the other day. I strain to remember the Polish I used to speak so fluently so that I can understand her.

I am not there now, I am home in Massachusetts, but I will be going to visit her in a few days to help set up space for, and help to acclimate, a live-in helper who speaks Polish.

Perhaps I should take my Valium with me. After all, it will still be April.

in the middle of it all

In the middle of it all, my GPS gets stolen out of my car last night, my doctor has no record of my appointment when I get there today, and a lens falls out of my glasses tonight.

In the middle of it all, I’m planning to drive 5 hours to go to my cousin’s daughter’s wedding this weekend.

In the middle of it all, my cheap new small cpu arrives and is working like a charm.

In the middle of it all, my doctor takes me anyway, and I find out that my spinal X-ray showed something I can’t pronounce but has something to do with bone growth connecting my vertebrae, limiting my range of motion. The next step is an MRI. My blood test shows that I have less than half of the minimum necessary amount of Vitamin D.

In the middle of it all, I fill five prescriptions.

In the middle of it all, my grandson reads me his printing practice sheets, gives me a memory test (which I fail), invites me to play with his miniature veterinary clinic pieces, and runs over to say goodnight (as he does every night).

In the middle of it all, I have no idea how my mother is.

In the middle of it all, I blog.

Life goes.

broken bonds, broken hearts

Somehow, I always thought that family blood bonds could not be broken, no matter what. Every family has its dysfunctions; I figured ours were no worse than most.

Wrong.

My mother is with my brother, and I have left. Chances are that I will never go back there. I didn’t want to leave my mother, who has late-stage dementia:

Common signs displayed by people with late-stage dementia who experience physical or emotional discomfort include: increased agitation, fidgeting, or repetitive movements; tense muscles, body bracing; increased calling out or repetitive verbalizations; decreased cognition, decreased functional ability or withdrawal; changes in sleep pattern; falling; increase in pulse, blood pressure, and sweating. A good deal of emotional discomfort in dementia patients comes from difficulty sorting out and negotiating everyday life activities.

But as my brother’s rage against me escalated, I realized that harassing me was more important to him than taking care of my mother, even if the resulting vocalized tension increased her agitation and anxiety.

So I left. I broke my heart and I probably broke hers. But my presence in my brother’s house seemed to be a constant source of irritation to him — irritation that slowly built into outright rage.

Because I fought back, finally refusing the burden of the last bullying straw.

And so I left. I left my mother in pain and bewilderment. I left my brother in a rage at me for something that had nothing to do with my care of our mother.

Tomorrow, a live-in home health aide is supposed to arrive. I hope that she is kind to my mother. I hope that my brother is kind to her.

I might never know.

a day in purgatory

Eight hours in the emergency room and12 in a hospital room with my mother. And brother.

It wasn’t hell, but it sure was as close to purgatory as I can imagine.

At my insistence and her doctor’s recommendation, we took my mother to the emergency room soon after I arrived on Tuesday. She had a minor fall just before the weekend, and the doctor wanted to get her an x-ray and also — as long as she was there — get the blood and urine tests taken for which she was long overdue.

The emergency room only had one doctor on the premises. And then it turned out that the hospital itself didn’t have ANY doctors on the premises when they finally admitted my mother just after midnight.

The nurses, however, were outstanding — except for one. But there’s always one, isn’t there.

While it turned out that my mother hadn’t broken anything, she did have a major urinary tract infection going, and they hooked her up to an intravenous antibiotic.

HOWEVER, they couldn’t hook her up until they could calm her down, since her dementia was in full swing and she kept trying to fight everyone off. Solution? Drugs, of course.

EXCEPT we have yet to find a drug that will calm her down. Stuff like Xanax has the reverse affect. They finally had to resort to morphine. As long as she was totally knocked out, everything was fine. (Well, fine for her. My brother and I got no sleep, and the most we ate in all that time were cheese sandwiches and potato chips from the nearby convenience store. My reflux was starting to protest.)

Recommendations from two neurologists indicated that she needs 24/7 supervised care. With relentless pressure from me, my brother has agreed to interview home health care workers from a private-pay operation that provides aides trained in geriatric caregiving. Taking care of a 93 year old with severe dementia and all sorts of aches and pains is not a one person job. “Just keep her comfortable,” one neurologist advised. (If only!)

When the Social Worker came in to tell us what our options would be for help when she got home, she suggested a place (private pay) that provided home aids that specialize in geriatric care. Being the assertive “bitch” sister that I am, I had her immediately call the head of the outfit, who came right over to give us the information even before we left the hospital.

One or two of the possible aides are supposed to come over tomorrow for interviews.

There is enough money available to pay for help with her care, but it’s not under my control.

My brother believes that I am a lying, controlling, manipulating bitch.

Whatever.

I’m just going to do whatever I have to do to make sure that my mother gets the compassionate care she needs to have at this stage of her life.

Now, at home, she often speaks gibberish, will fall down if she tries to stand up or walk by herself (which she constantly tries) and has a battery of meds that we all hope will make it easier on everybody. Much of the time she cries — one breath in and on the outbreath a two-note loud sigh. Over and over. For hours at a time. This is not new; it started months and months ago.

I can’t wait to get back to my home. And I want to make sure that my brother hires someone good to help him with my mother’s care. I just don’t know how long I can last here. My sciatica is really acting up from having to help her up and down.

There is no perfect solution to all of this. I’m just too ornery to give up trying for a decent one, for my mother’s sake.

ending entropy

Entropy is a term used to define (among other things), a process of deterioration of a system.

In terms of technology, my life seems to be one big process of entropy. My old desktop died a slow death over the past several months. Last week, I totally fried the new laptop that I inherited from my once husband. (That frakkin’ Vista!) Now I’m on a old little laptop that does not hold the wifi settings that I need to get online. It’s only a matter of time with this machine as well. How do you end entropy?

I think the first thing for me to do is cut my losses. and not spend any more time and money trying to fix messes of machinery that have aready joined the slide into infinite entropy.

I have to start over, with an inexpensive CPU with XP that can keep me online. If I ever have enough money to get a new laptop, it will be a Mac. That’s a big IF.

And then there’s my mother, whom I somehow have to rescue from the entropy of her care by my brother. I’m leaving tomorrow, driving into what I know will be a battleground for what’s left of my 93 year old mother’s demented life. She deserves better than she’s getting.

She fell yesterday, and the doctor wanted her to go to the emergency room, but that didn’t happen. I want to take her there when I arrive tomorrow. It could wind up a fierce and legal battle if things do not change to her benefit.

Took a sleeping pill to calm me dowm.

TOMORROW’S ANOTHER BATTLE FOR FREEDOM AND INTEGRITY AND SELFLESSNESS.

the funk and flash of elder style

A comment on my previous post led me to this site featuring stunningly attired elders.

Appropriately entitled “Advanced Style,” this site is constantly adding photographs that illustrate just how creative, funky, and individual elders can be in the way they dress. I can’t help notice that many of the photos are of people who live in New York City, where style is queen.

As a tease to get you over there to look around, here’s a look at three of my favorites.

The site welcomes photo submissions of elders in full regalia — or even just elders with remarkable style. Send to Advancedstyleinfo at gmail dot com.

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At some point back in the early 70s I had a book called Native Funk and Flash. I wish I had held onto it, because here on Amazon, a collector’s copy is worth $100.

I copied several of the designs in the book into embroidered embellishments on clothing. I put one design on the bottom side of a denim skirt that I made. It was called “four faithful fish feeding on the bread of life,” with a circular braided bread image in the middle and four fish facing the bread, each positioned in one of the four directions.

My most elaborate project reproduced the rising phoenix (pictured on the butt of the woman on the front cover, above) to cover the whole back of one of my husband’s muslin shirts. I embroidered it all with various colors of metallic thread.

I still have that shirt in a storage bin in the cellar. I’m going to dig it out and post a photo of it because that glowing phoenix is one of the most beautiful things I have ever created.

Ah those 60s! Even though we were married and parents, we still had a lot of funk and flash.

(For images from the book: Native Funk and Flash, link over to Knitting Iris.

and now for something completely frivolous

Everyone seems to be talking and blogging and reporting on the most recent Wall Street scandal — the AIG multi-million dollar bonuses. No doubt about it, we all have plenty of reason to be majorly upset. Our country is riddled with thieves, and try as he might, who knows if even the president can stop them.

But enough about that.

I am looking in the mirror and wondering if I should be wearing what I’m wearing — which is just about what I wear every day, home or away: jeans, layered t-shirts, sneakers. I’m wondering what is considered “age-appropriate” dressing for someone almost 70. While this issue is of absolutely no importance in the “Big Picture,” it is one that seems to periodically rise into my “little picture” consciousness.

Even though I asked my daughter to take notice and tell me if she thinks that I’m dressing too young for my age, she hasn’t yet done so. But I’m still wondering.

The problem is that I have always loved clothes, used them more as costumes, depending on where I was going to wear them. I had my ballroom dance clothes (nothing too fancy; mostly swirly skirts and dressy but comfy and washable tops), my fashionable work clothes, and my funky other items like embellished jeans and jean jackets. Also, dozens of pairs of really cool shoes, none of which I can wear any more. And, of course, attention-getting jewelry, some of which I had made myself.

Well, I got rid of my work clothes and packed up my dance clothes. I gave away my embellished denim and my cool shoes. What’s left is rather boring and ordinary, and maybe that’s the issue. I am not used to looking ordinary, certainly not like an ordinary older woman. It’s disturbing to me that I am finding myself so awfully ordinary.

I know that clothes don’t make the woman. But they can sure perk me up.

I try to search around the Net for what striking older women are wearing and realize there are no models out there — except for older actresses. So I begin to search out photos of older actresses — the ones who don’t look all plastic.

Judi Dench is 74 and looks fabulous with her gray hair and colorful accessories.


Lauren Bacall
is 85 and dresses with classic simplicity.


Faye Dunaway
is a year young than I, and she has her own individual style. I love her long hair and wish I had the patience to grow mine. (Of course, hers could very well be hair extensions.)

In my searching for “age appropriate clothing,” I run across a few forum comments that suggest that older women look much better than younger women in eye-catching accessories. As I was watching the new tv show Castle the other night (I got hooked on Nathan Fillian in his Firefly and Serenity days) I couldn’t help notice Susan Sullivan‘s outfits. She wears
unique and colorful clothes and accessories and looks smashing in them
because they are not designed for 20-somethings.

When 80-year-old Doris Roberts played Marie Barone on Everyone Loves Raymond, she was dressed in black pants with a different printed shirt in every episode — sort of the typical and ordinary outfit for many older women who are not as slim as all of the others I mentioned above.

As herself, however, and dressed to the nines, Doris Roberts chooses fabrics and colors with flair and she looks positively stunning.

Well, my body type falls somewhere between Doris Roberts and the others I’ve mentioned.

So, what have I learned?

1. Slimmer women of any age look better in any kind of clothes.

2. If you’re not slim and older than 65 and you want to look striking, cover your arms, don’t wear anything too tight, and wear eye-catching accessories.

In another couple of weeks, I’m going back to my home town for my cousin’s daughter’s wedding, and there will be relatives there I haven’t seen in a while. I really want to feel good about the way I look. One of the things I’m going to do is go through some of the jewelry pieces that I made and see what might work. I might even make something new.

Black wide legged pants, a black, light-weight, scoop-necked, 3/4 sleeved swing sweater with metallic threads, and a necklace made of amber and silver. And metallic flat shoes. That’s what I’m thinking.

I wish I had a face like Judi Dench and a body like Susan Sullivan (who is only two years younger than I). But we all have to work with what we’ve got.