the chalice of pain

This is my response to Magpie Tales’ visual writing prompt #42. You can find the responses of others by going here.

The Chalice of Pain

Father, if it is possible, let this chalice pass from me! Father, all things are possible to thee, remove this chalice from me!

Pain. We all feel pain. We all would rather not feel pain, and those in pain usually can let you know where it hurts and how badly it hurts.

Except if they have dementia.

There is a false assumption that those with dementia don’t feel pain because they often can’t articulate that fact in ways that are obvious — especially with words.

From “Pain and Dementia,” referenced above:

Over time your family member may lose the ability to speak or may not make sense when they do. Therefore, it is very important to be able to recognize behaviours or actions that indicate pain. Some of these pain-related behaviours include the following:
* frowning, grimacing, crying
* swearing, moaning, calling out, noisy breathing
* fidgeting, pacing, rigid posture
* guarding an area of their body, not wanting to move
* hitting or striking out
* withdrawing or resisting when someone is helping with personal care
* refusing food
* change in appetite, rest periods, or sleep patterns
* increased confusion, crankiness, or distress

From “Behavioural Changes”:

* Sudden changes in behaviour are important to recognize as these are often the only clue that an older person is sick, getting worse in their dementia, becoming depressed, or having a side effect from a new medication.
* Attention to your family member’s behavioural and psychological symptoms are key to improving and maintaining their quality of life.

A recent PBS Frontline program, “Facing Death,” documented the pain suffered by both family (emotional pain) and those dying from dementia and other illnesses (both emotional and physical pain.) You can watch the program at the above link. Also of great insight are the comments left by viewers.

From “What happens when elderly people die?”

…fewer than one in five people can have a peaceful end, since ‘dying is a messy business’ for which relatives are unprepared. He continues: ‘Too often, patients and their families cherish expectations that cannot be met, with the result that death is made all the more difficult by frustration and disappointment with a medical community that may be able to do no better.’

Relatives who expect aware deaths may become angry and turn their anger onto doctors and nurses when death takes other forms. Dying people often need psychosocial support, but the potential for introducing this occurs only when the dying phase is identified. This is not always possible in trajectories 2 and 3….. [2) long-term disability with periodic exacerbations and unpredictable timing of death that characterize dying with chronic organ or system failures (some cancers that respond to treatment and then relapse come into this category); (3) self-care deficits and a slowly dwindling course to death from dementia.]

After watching the Frontline program and hearing how the doctors explain the options to the families of dying patients, it seems to me that there needs to be more honesty from the medical profession about the dying process, its inevitability, and the benefits to the dying of making those patients as pain-free as possible.

Maybe, because I grew up above a funeral parlor operated by my father, a funeral director – maybe, because I sat at my father’s bedside while it took days for him to die of cancer (his mind was alert and he chose to die at home with a certain amount of pain) – maybe because I survived the excruciating pain of a breech birth and thought I had died and now I’m not afraid to die – I feel strongly that, when death is close at hand, it should be welcomed as a relief from pain and that pain (for example, of old organs failing, of agitated dementia) should be aided by pain-relief medication.

On my bookshelf is “Final Exit,” which I bought a long time ago out of curiosity about peaceful “self-deliverance” when my time comes, especially if that time comes riddled with pain.

But it becomes a lot more complicated if a form of dementia has stolen my ability to communicate my pain and my wishes. My daughter knows that I’d rather die in peace than die in pain.

In the story of the Garden of Olives, even Jesus pleaded for the chalice of pain to be taken from him. No one wants pain, although we often are willing to bear with a certain amount of it if it’s going to get better. But the pain of dying does not get better.

Somehow we need to be educated about that fact so that we hold the best pain-free interests of our dying relatives in mind.

compost

This is my response to the visual writing prompt at Magpie Tales. You can read the responses of other writers at Magpie 35.

Compost
It is the season’s leavings
that root me to this spaded place —
bent twigs, loosed leaves,
the year’s used ends and endings
storm-swept in sheltered corners.

Barren fields and desert reaches
free the weed to tumble in its time,
but the clutter of the season’s leavings
frees the roots from hidden seeds
of other spaces, other times.

artifact

This is my response to the MagpieTales #34 visual writing prompt. Go to the link to get to the responses of other writers.

Artifact

There once was a point
to this old lantern
that now only reflects
what light slips through
somber drawn drapes

Once it had a purpose in
repelling night’s dark hand.
Its flickerings lit dim stairwells,
dispelled the haunts of nightmares,
revealed vague truths hidden
within shadowy eyes.

Useless in lonely oblivion,
it waits for storms
that devour the sky
and send the world
into frightful corners
of unexpected night.

a sense of scent

I almost missed this Magpie Tales #33 visual writing prompt, but better late than never.
(As usual, you can read other submissions at the link above.)

A Sense of Scent

She thought she was done with him,
but one night the moon rose
clear and full-faced,
and an early autumn wind
swept the scent of lavender
through her open window.

Some times are harder than others
to sit silent,
hands clenched against
the lure of the pen,
mouth set against
the call of the phone,
thinking to oneself
that some things are better
left to silence,
to the slow decay of time,
the turning of moons
and lavender seasons.

But even in the darkest of corners
some things refuse to die –
some small husk still
riddled with seeds,
some insistent root
defying the dust,
some dormant dream
of a riotous clash of hearts,
clutch of minds,
dance of hands that
hope and hold and, too soon,
let go.

She thought she was done with him,
except his voice
still pulls at her belly
like the insistent tides of the moon.
So when he calls
from places lush
with a thousand thriving things,
she sends him dewy lavender
wrapped in familiar black lace,
because, they say,
The sense of smell
is the most visceral,
holding even the darkening
memory of the dying.

stasis

This is my response to Mag 30 visual prompt at Magpie Tales.

will it rot or not

That’s how I’m feeling about my life right now. I took my bite. So what. I wait for my mother to let go of a life no longer worth living and my son to find a life worth living with passion. And I wonder if my life has been worth living. Will the apple rot or finished being consumed with relish. And does the larger menu matter any more. These are questions that I ask as statements. Maybe the core of this metaphor is that I just don’t know anymore. As Eve found out, sometimes one bite is all you get before being tossed out of Eden.