For most people I know, taking time out to sit down and eat lunch at a sunny spot of their kitchen table and pick up the mystery book they’ve been reading is not a big deal.
For me, it’s an event.
So, on Sunday, when she finally fell asleep after a day and a half of constant crying and moaning and whining and refusing to respond to any comfort, I finally had a few moments of quiet. And sunlight.
Her bouts of wordless whining are like Chinese water torture. At times like these I feel like I’m losing it. I threaten to go off my antidepressants and have a nervous breakdown just so that I can get some extended peace and quiet. Just so that I no longer have to live every day under the tyranny of her dementia. I am trying to convince my brother that she needs antidepressants. Dementia and depression are often all mixed up together.
When I start feeling like that I go into the garage, close the door, and loudly vocalize my anger, my frustration, my restlessness, my powerlessness.
But Sunday, there was sunlight and quiet, so after lunch, I scooted outside to walk up and down the long crunchy-leafed driveway, picking up tree limbs tossed there by the wind a few days earlier and meditating on the creative projects I will someday do when this trying crying time is over.
I take my little camera and stomp around the property, looking for roots, old roots that will become part of one of the projects I’m imagining that I will get to do someday.
I find several large trees that had been unearthed 30 years ago when the land was cleared to build the house. Good old roots.
I’m intrigued by a huge mound of unearthed rotting tree roots. In the afternoon shadows, forms and shapes emerge that become almost abstract art. “Autumn Art,” I muse.
And, maybe this, a watercolor.
In case you’re wondering what’s in my colorful sunny luncheon dish, it’s a concoction I make periodically when I get a hankering for food with flavor. (Cooking for my mother means no spices — she thinks the specs are bugs — so it’s basically onion powder and garlic powder and not too much of those because she has a sensitive stomach.)
So, every once in a while, I make a big bowl of assorted healthy stuff that I refrigerate and eat for days on end. The basis of it comes from jars: marinated zucchini, roasted sweet red peppers, green and black olives; a small can of diced oregano and garlic flavored tomatoes; frozen mixed vegetables (carrots, peas, corn) that I partially cook and then marinate while still warm in whatever vinaigrette salad dressing I have on hand; chick peas (which I also warm and throw in the marinade); chopped red onions. Then I mix it all together, adding some of the liquid from the jarred ingredients so that I get the tangy taste I crave, and I put the very large container in the refrigerator and every once in a while give it all a good mixing.
When I want to have some for lunch, I add other last-minute ingredients (whatever I have on hand), such as mushrooms, chunks of fresh mozzarella, pepperoni, salami, and even walnuts.
Obviously, my life is so devoid of flavor that I obsess on food. At least I don’t drink.
I cannot even imagine how difficult it must be what you are going through, but am sure glad to see these small islands of sun and color (pleasures) in your life. 🙂
Thanks, Maria. I try to keep the whole point of it all in mind, but on some days, the point is sharply annoying.
You may have already tried this, but… how about earplugs? They won’t completely block the whine, but might reduce its intensity level, possibly make it less brain-piercing.
All the best to you.
It’s not just the sound of it all. She follows me around, clutching at me. I know it sounds picky, but I have flashbacks to when my kids were little and always hanging onto me and I had nightmares about monkeys crawling all over me. It’s that feeling of having no way to enforce personal boundaries.
I have earplugs. They don’t help much.