It’s six o’clock on Sunday. My mother went to bed around midnight last night, and she’s still sleeping. That’s 18 hours.
We tried to wake her up, but she only mumbled something about her whole body aching. We check her periodically to see if she’s still breathing, the way new parents do with their new baby.
I take a shower and wash my hair and make sure I have all her medical information is ready. In case.
What if she sleeps through tonight. Do we take her to the hospital. Do we just keep an eye on her and wait until she wakes up by herself. If she does. What if she doesn’t.
These are questions, but I write them as statements because no one has the answers. It’s one day, one hour at a time.
I spent hours this morning, while she slept, shredding old bill statements, throwing out things I’ll never use and probably no one else will, packing up more books to take to the library, and filling bags of odds and ends for the Salvation Army.
I am letting go.
Is she, also?
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She woke up at 8 pm, weak and disoriented. I got her to take her meds, and then I fed her some Jello. And then some homemade turkey soup with pastina. A cup of her fake coffee and a couple of cookies later, she felt better. It’s now after midnight, and she’s still up and weepy again. My brother is watching tv with her. I need to sleep, because I’m sure that, when she’s finally ready for bed, I’m going to have to lie down with her.
What do they do with dementia patients in nursing homes who won’t go to sleep and want to go home?? That’s not a rhetorical question.
Category Archives: death and dying
what the hell is that on her head?
My mom is sitting down at the table having a cup of her fake coffee. AsI look down at her, I notice a thick smear of something light green stuck in her hair. Huh?
So, I touch it. It’s sticky. I smell it. It smells minty. Aha!
Toothpaste!
I have to admit it. I laughed a lot.
She has a spot on her scalp that always seems to itch her. When she tells me about it, I put Scalpicin on it, and that helps. I guess this time as she combed her hair in the bathroom mirror, she picked up the first thing that looked like an ointment tube and rubbed it on the itch.
The last time she rubbed something strange on her body, it was on her lips and they swelled to the point where I had to take her to the doctor’s. As far as anyone could tell, it was an allergic reaction to something, and I think she had been rubbing her 30-year-old Lancome cream on her lips. I cleaned out her beauty lotion drawer and it hasn’t happened since.
She always seems to be fidgeting. Mostly she takes sheets of Kleenex and folds them into squares and loads her pockets with them. She insists on having tops and pants with pockets. Sometimes I miss emptying a few when I do her laundry. Even if I use those scent-free dryer softener sheets, those little bits that stick to the clothes are a bitch to pick off.
She would love to fold blankets and other larger squares, but she has a torn muscle in her left shoulder. Not only can’t she raise that arm, but the whole shoulder is painful, even though she’s had a cortisone shot. After Thanksgiving, I am going to arrange for a physical therapist to come over and help her with that arm. I think I finally found a place that is certified for Medicare.
Very often, she snaps. No, literally. She snaps and unsnaps those closings on the tops I buy her so that they are easy to get on and off. Last night, she was desperately trying to snap closed the edges of a very old pillow case that she had long ago sewed snaps on to keep closed. (I guess she’s always been obsessed with snaps.) When she went to sleep, I resewed the ones that were coming off and sewed on a few additional snaps so that she could have yet another snap-happy fiddle thing.
Actually, I found a site on the web where you can buy fidget things for people with dementia. Other sites suggest these stress-reduction toys. My mom will not fiddle with toys. She will only fiddle with things that are familiar to her; things that she has used in her role as wife and mother. Safety pins are one of those things. She finds them and pins them to the inside of her slacks. The other day I found her picking her teeth with the point of a large safety pin. She has a drawer full of various dental picks that I bought her. But she uses a safety pin. Sigh.
I spend a lot of time Googling for ideas on how to calm my mother, since her fidgeting is associated with her nervousness and anxieties. As a result, I sent for a really soft furry teddy bear and made a sweater for it with a Polish logo. You’ve heard of Polar Bears? Well, this is a Polish Bear:

I thought that stroking the bear’s fur might relax her. I thought the Polish theme would attract her. Nope. She knows it’s a toy. Cute, but no cigar.
Well, I tried.
In another day I’m planning to try to leave to go to my daughter’s for Thanksgiving. Actually, I’m going no matter what. I don’t know how my brother is going to manage, but I’m leaving enough food, clean underwear, desserts etc. so that my mom will have whatever she needs. He just has to make sure that she gets it all.
I can’t wait to see my grandson, who has been unofficially adopted by the guys in the local firehouse that his mom takes him to visit periodically. The last time he was there, they gave him a piece of real fire hose (including nozzle) and a door chock (whatever that is). His firefighter suit, of course, is compliments of Grammy.

He wants to be a firefighter when he grows up. Also the owner of a tree-cutting service. Or a road construction worker. Or some kind of para-medic/rescue worker.
I think he’s going to spend Thanksgiving rescuing his Grammy.
8 1/2
That’s eight and a half hours in the ER. We left at 5 p.m. It’s now almost 2 a.m. I haven’t eaten since lunch, and I’m sitting here eating baba ghannouj with a spoon and drinking V-8 Fusion because it hurts when I chew because I had a tooth extracted yesterday.
Mom was severely dehydrated and we couldn’t seem to stop the diarrhea. So they took all kinds of her fluids for testing, stuck a hydrating infusion in her arm, X-rayed her and did a CAT scan of her stomach and intestines. They didn’t find anything that we didn’t already know was there — nothing that would be causing her to spend so much time sitting on the commode. So, just in case, they gave her an antibiotic and we loaded up on gatorade on the way home.
And just to make the day complete, as I was rushing around making sure I had her health insurance info and stuffing extra clothes for her in a bag, along with a water bottle, kleenex etc. etc., my flip-flop caught on something sticking out of her wheelchair and I did some damage to my second toe on my left foot. No time to worry about that, right?
At the hospital, my toe started throbbing; turning purple. I had the option of signing myself into the ER too and have my toe X-rayed, but that would have left my sib to deal with my mother all by himself. My toe hurt and looked gross, but I could bend it and move it, so I figured it’s just a bad bruise. I opted to tend to the reason we were there in the first place.
She is supposed to consume nothing but ginger ale and gatorade for the next two days. If she refuses to drink — as she has been doing midst fits of dementia — it’s back to the hospital and back on the IV.
I’m wondering how they ever manage situations like this in nursing homes. It took two of us to manage the care of one of her.
I’m still hungry. But I’m also tired. I don’t know which need I’ll fill after I post this. Either way, it’s been a hell of a day.
diarrhea, diarhea, diarrea
It doesn’t matter how you spell it, google will find it.
And my mother has had it for four days now. We called the doctor today and will be bringing a sample to the lab for testing.
Nothing has worked to get it under control. I’m trying to make her drink Pedialite, but she’s not very cooperative. Right now she’s up combing her hair with a toothbrush. I’m making her some chicken broth with cut up baked potato. That’s supposed to OK for her to eat.
We’ll soon see.
a mother’s day reality bite
The Limerick Savant has put out a call for Mother’s Day limericks. I dare the jester to print this one, an original by this burned out, currently bitter caregiver:
Of mothers there are varied kinds.
Some are honored; some are maligned.
There’s no perfect mater
and sooner or later
you learn to accept what you find
To “mother” with grace is not easy.
You’re expected to always be breezy.
And when you mother your mother
‘cause a choice there’s no other
you likely go out of your mind.
Anyone with a Mother’s Day limerick to share, email your creative endeavor to limericksavant@gmail.com.
Obviously, I had a meltdown today. Told my sib I just don’t care anymore. Either he agrees to let me hire someone to come over here and give her some companionship, or I give him whatever money she gave me and I’m out of here. (The reasons why I only have those two choices are too dysfunctionally private to share here.)
I left home when I was 17 because I couldn’t get along with her (I’ve blogged about that before). When I thought she couldn’t live on her own anymore and she was always calling me long distance about various ailments, I decided to take her on, hoping that we both had changed enough to find a way to coexist — if not actually enjoy each other’s company. What an idiot I was.
I find that I don’t mind at all doing all of the chores, both for her personally and just general cooking and cleaning. I just can’t stand her company. I am a terrible daughter. And I don’t feel bad about that at all.
According this site, she’s nearing the end of stage 5 dementia, moving rapidly into stage 6. There’s one more stage after that, and she could live another decade. F**K!.
Assassination Christmas
Bizzare.
It’s Christmas. I just finished watching The Bourne Supremacy and made my mother some chicken soup, since she’s got what looks like a tooth abcess — swollen jaw and pain and on an antibiotic prescribed by her dentist after I called him at home early on Christmas Eve.
Christmas Eve I spent reading Hunter’s Moon, a paperback escapist novel that defies categorizing, but does feature an assassin who is a werewolf and a female who hires him to kill her because her mother is driving her crazy and she can’t bring herself to be mean to her mean mother.
Aha. A pattern here, bizarre though it might be.
A month or so ago, I rented Assassination Tango, a movie that deserves a lot more than the little attention it got. Robert Duvall made my mouth water. Perhaps there’s a little werewolf in me.
Loveable assassins. Wishful thinking?
That mesmerizing flow of light and dark. That dancing with your demons and stepping fast to keep your balance. Life with adventure, sweet danger, passion, power.
No dancing here for me this Christmas, though. Just fantasy assassins with heart.